A

Angelman Syndrome Foundation

414 Plaza Dr., Ste. 209

Westmont, IL 60559-5507

Website

Apert Support

Don & Cathie Sears

Post Office Box 2571

Columbia, SC 29202

803-732-2372

Website

CHADD- Canada, Inc.

Children and Adults with Attention Deficit Disorder

1376 Bank St., Ste. 214

Ottawa, ON CAN K1H 1B3

(613) 631-1209

(613) 257- 1563 (fax)

CHADD

Canadian Angelman Syndrome Society

PO Box 37

Priddis, AB CON TOL 1W0

(403) 931-2415(voice/fax)

Angelman Canadian

Apert Syndrome Pen Pal Network

PO Box 115

Providence, RO 02901

(401) 421-9076

CHADD: Children and Adults with Attention Deficit Disorders

499 NW 70^th Ave., STE. 101

Plantation, FL 33317

(800) 233-4050

(305) 587-3700

(305) 587- 4599 (fax)

Website

Email

Apert Syndrome Support Group

8708 Kathy St.

St. Louis,MO 63126

(314) 965-3356

Apert syndrome group

National ADD Association

PO Box 972

Mentor, OH 44061

(800) 487-2282

(440) 350-9595

(440) 350-0223(fax)

Website

Email  

Apraxia

Asthma & Allergy

Autism

National Organization for Apraxia and Dyspraxiia

7675 Charter Oaks Dr.

Pensacola, FL 32514

(904) 478-4895 (voice/fax)

(904) 494-1444 (TTY)

Email

Allergy/Asthma Information Association

30 Eglinton Ave. W., Ste. 750

Mississauga, ON CAN L5R 3E7

(905) 712-2242

(905) 712-2265 (fax)

Asthma & Allergy site

Autism Society of America

7910 Woodmont Ave., Ste. 650

Bethesda, MD 20814

(800) 328-8476

(301) 657-0881

(301) 657-0869 (fax)

Website

Asthma and Allergy Foundation of America

1125 15^th St. NW, Ste. 502

Washington, DC 20005

(800) 727-8462

(202) 466-7643

(202) 466-8940 (fax)

Website 

Email

Autism Society of Canada

29 Yorkville Ave., #202

Toronto, ON CAN M5R 1C4

(416)922-0302(voice/fax)

(416) 922-1032 (fax)

Autism Society CA

B

EAR Foundation

1817 Patterson St.

Nashville, TN 37203-2110

(615) 284-7807 

The Facial Paralysis Foundation
9401 Wilshire Blvd, Suite 650
Beverly Hills, California 90212

(310) 657-2203

Bell's Palsy website

Email 

International Foundation

for Functional

Gastrointestinal Disorders (IFFGD)

PO Box 17864

Milwaukee, WI 43217

(888) 964- 2001

(414)964-1799

(414)964-7176(fax)

Website

Email

Brain Injury

Brain Tumors

Center for Loss in Multiple Birth (CLIMB), Inc.
P.O. Box 91377
Anchorage AK 99509

climb@pobox.alaska.net

 (Jean Kollantai)

907⁄222-5321

Website

Brain Injury Association

105 N. Alfred St.

Alexandria, VA 22314

(800)444-6443 (family help line)

(703) 236-6000

(703)236-6001(fax)

Website

American Brain Tumor Association

2720 River Rd., Ste. 146

Des Plaines, IL 60018

(800)886-2282

(847) 827-9910

(847)827-9918 (fax)

Website

Email

Compassionate Friends

PO Box 3696

Oak Brook, IL 60522-3696

(630) 990-0010

(630) 990-0246(fax)

Website

Email

C

American Cancer Society

1599 Clifton Rd. NE

Atlanta, GA 30329-4251

(800) 227-2345

(404)320-3333

(404)982-3676

Website

Ontario Federation for Cerebral Palsy

1630 Lawrence Ave. W., Ste. 104

Toronto, ON CAN M6L 1C5

(416) 244-8003

(414)244-6543(fax)

  

 

Cleft Palate Foundation

1829 E. Franklin St., Ste. 1022

Chapel Hill, NC 27514

(800) 242-5338

(919) 933-9044

(919)933-9604(fax)

Website

Email

Canadian Cancer Society

10 Alcorn Ave., Ste 200

Toronto, ON CAN M4V 3B1

(426) 961-7223

(416)982-3676 (fax)

Website

Email

United Cerebral Palsy Associations

1660 L St. NW, Ste.700

Washington, DC 20036-5602

(800)872-5827

(202)973-7197(TTY)

(202)776-0406

(202)776-0414(fax)

Website

Email

Craniofacial Disorders

Children’s Craniofacial Association

PO Box 280297

Dallas, TX 75228

(800) 535-3643

(972)994-9902

(972)240-7607(fax)

Website

Cystic Fibrosis

The Cerebral Palsy Network

Email

The Cerebral Palsy Network

Cystinosis

Canadian Cystic Fibrosis Foundation

2221 Yonge St., Ste. 601

Toronto, ON CAN M4A 2B4

(800) 378-2233 (Canada only)

(416) 485- 9149

(416)485-0960(fax)

Website

Cystinosis Foundation

2516 Stockbridge Dr.

Oakland, CA 94611

(800) 392- 8458

(510)482-8119

Website

Email

D

American Association of the Deaf-Blind

814 Thayer Ave., Ste. 302

Silver Spring, MD 20910

(301)588-6545(TTY only)

(301) 588-8705 (fax)

Canadian Down Syndrome Society

811 14^th St. NW

Calgary, AB CAN T2N 2A4

(403) 270-8500

(402)270-8291(fax)

Website

Dystonia Medical Research Foundation

One E Wacker Dr., Ste. 2430

Chicago, IL 60601-1905

(312) 755-0198

(312) 803- 0138(fax)

Website

The Canadian Defblind and Rubella Association

c/o The W.Ross Macdonald School

350 Brant Ave.

Brantford, ON CAN N3T 3J9

(519) 754-0729

(519) 754-5400 (fax)

National Down Syndrome Congress

666 Broadway, 8^th Fl.

New York, NY 10012-2317

(800) 221-4602

(212) 460-9330

(212) 979-2873 (fax)

Website

Email

Dystonia Medical Research Foundation-Canada

116-230 Heath St. W.

Toronto, ON CAN M5P 1N8

(800) 361-8061 (Canada only)

(416) 487-8226

Email

Recording for the Blind & Dyslexic

20 Roszel Rd.

Princeton, NJ 08540

(609) 452-0606

(609) 520- 7990 (fax)

E

American Epilepsy Society

638 Prospect Ave.

Hartford, CT 06105-4240

(860) 586-7505

(860) 586-7550(fax)

Website

Email

Epilepsy Canada

1470 Peel St., Ste. 745

Montreal, PQ CAN H3a 1T1

(514) 845- 7855

(524) 845-7866 (fax)

Website 

F

The Food Allergy Network

10400 Eaton Pl., Ste 108

Fairfax, Va 22030-2208

(703) 691-3179

(703) 691- 2713(fax)

Website

Email

National Fragile X Foundation

1441 York St., Ste. 303

Denver, CO 80206

(800) 688-8765

(303) 333-6155

(303) 333-4369(fax)

Fragile x

G

Pediatric/Adolescent

Gastroesophageal Reflux

Association Inc. (PAGER)

PO Box 1153

Germantown, MD 20875-1153

(301)601-9541

Email 

The Oley Foundation

214 Hun Memorial

Albany Medical Center, a-23

Albany, NY 12208-3478

(800) 776-OLEY (6539)

(518) 262-5079

(518) 262-5528 (fax)

Website

Alliance of Genetic Support Groups

4301 Connecticut Ave. NW, Ste.404

Washington, DC 20008

(202)966-5557

(292(966-8553(fax)

Website

Email

H

Alexander Graham Bell

Association for the Deaf

3417 Volta Pl. NW

Washington, DC 20007-2778

(202) 337-522- (voice/TTY)

(202) 337-8314(fax)

Website

Email  

American Heart Association

7272 Greenville Ave

Dallas, TX 75231-4596

(800) 242-8721

(214)706-1176

(214)706-2139(fax)

Website

Children’s Hospital International

2202 Mt. Vernon Ave., Ste. 3C

Alexandria, VA 22301

(800)2-4-CHILD (242-4453)

(703) 684-0330

(703) 684-0226 (fax)

Website

Email

The Canadian Hearing Society

271 Spadina Rd.

Toronto, ON CAN M5R 2V3

(416) 965-9595

(416)964-0023 (TTY)

(416) 928-2525(fax)

www.chs.ca

Email

Children’s Heart Association for Support and Education

c/o Cardiac Clinic

Hosp for Sick Children

555 University Ave.

Toronto, ON CAN M5G 1X8

(416) 813-5848

(416)813-5582

National Association of Hospital

Hospitality Houses

4915 Auburn Ave., Ste. 303

Bethesda, MD 20814

(800) 543-9730

(301) 961-5264

(301)961-3094

Website

International Foundation for Alternating Hemiplegia of Childhood

239 Nevada St.

Redwood City, Ca 06460

(650) 265- 5798

Email

Guardians of Hydrocephalus

Research Foundation

2618 Ave. Z

Brooklyn, NY 11235

(800) 458-8655

(718) 743-4473

(718) 743= 1171 (fax)

The Carter Centers for Brain

Research in Holoprosencephaly

and related malformations

Texas Scottish Rite Hospital for

Children, Dept. Of Neurology

2222 Welborn St.

Dallas, TX 75219

(800)421-1121

(214)559-8411

(214)559-7835(fax)

Email

Email

National Hydrocephalus Foundation

12413 Centralia Rd.

Lakewood, CA 90715-1623

(562) 402-3523

(562) 924-6666(fax)

Website 

I

National Association for Continence

PO Box 8310

Spartanburg, SC 29305

(800)252-3337

(864) 579-7900

(864) 579-7902

Website

Email

Simon Foundation for Continence

PO Box 815

Wilmett, IL 60091

(800) 237-4666

(847) 864-4913

(847) 864-9758(fax)

K

American Association of Kidney Patients

100 S. Ashley Dr., Ste. 280

Tampa, FL 33602

(800) 749-2257

(813)223-7099

(813)223-0001(fax)

Email

L

Learning Disabilities

Association of America

4156 Library Rd.

Pittsburgh, PA 16234

(412) 341-1515

(412) 341-8077

(412) 344-0224(fax)

Website

 

National Leigh’s Disease Foundation

608 E. Waldron St., PO Box 2222

Corinth, MS 38834

(800) 819-2551

(601)286-2551

(601) 286-2551 (fax)

American Lung Association

1740 Broadway, 14^th Fl.

New York, NY 10019

(800) LUNG-USA (586-4872)

Learning Disabilities Association of Canada

323 Chapel St., Ste. 100

Ottawa, ON CAN L1N 7Z2

(613) 238-5721

(613) 235- 5391(fax)

Website 

Canadian Lung Association

Attn: Alana Fox

1900 City Park Dr., Ste. 508

Gloucester, ON CAN K1J 1A3

(613) 747-6776

(613) 747- 7430 (fax)

Website

Email

Leukemia Research Fund of Canada

Attn: Chris Thomas

1110 Finch Ave. W., Ste. 220

Toronto, ON CAN M3J 1T1

(800) 268-2144 (Canada only)

(416) 661-9541

(416) 661-7799 (fax)

American Liver Foundation

1425 Pompton Ave.

Cedar Grove, NJ 07009

(800) 223=0179

(800) GO-Liver(465-4837)

(888)4-HEP-ABC (443-7222)

(201) 256-2550

(201) 256-3214 (fax)

Website

Email

Leukemia Society of America

600 Third Ave., 4^th Fl.

New York, NY 10016

(800) 955-4572

(212) 573-8484

(212) 450-8844

(212) 856-9686 (fax)

Website

Canadian Liver Foundation

365 Bloor St. E, Ste. 200

Toronto, ON CAN M4Q 3L4

(800) 563-5483(Canada only)

(416) 964-1953

(416) 964-0024(fax)

Website

Email

M

Microcephaly Network

362 Jean Talon

St. Vanier, ON CAN K1L 6T9

(613) 742-5936

Website 

Email

Multiple Sclerosis Society of Canada

250 Bloor St. E., Ste 1000

Toronto, ON CAN M4W 3P9

(800) 361-2985 (Canada only)

(416) 922-6065

(416) 922-7238(fax)

Website

 

Duchenne Parent Project

125 Marymount Ct.

Middletown, OH 45042- 3755

(800) 714- KIDS (5437)

(513) 424-7452

(513) 425-9907

Website

Email  

National Multiple Sclerosis Society

733 3^rd Ave., 6^th FL.

New York, NY 10017-3288

(800) 344-4867

(212) 986-3240

(212)986-7981(fax)

Website

Email

N

Association for Comprehensive Neurotherapy

1128 Royal Palm Beach Blvd. #283

Royal Palm Beach, FL 33411

(561) 798-0472

(561) 798- 9820(fax)

Website

Email

 Making Headway Foundation, Inc.

115 King St.

Chappaqua, NY 10514-3460

(914) 238-8384

(914) 238-1693(fax)

S

National Scoliosis Foundation

5 Cabot Place

Stoughton, MA 01071

(781) 341- 6333

(617) 341-8333

Website

Email  

Threshold- Intractable

Seizure Disorder Support Group

& Newsletter

2150 Highway 35, Ste. 207C

Sea Girt, NJ 08750

Website

Email

Heart and Stroke Foundation of Canada

222 Queens St., Ste. 1402

Ottawa, ON Can K1P 5V9

(613) 569- 4361

(613)241-3278 (fax)

National Stoke Association

96 Inverness Dr. E, Ste. 1402

Englewood CO 80112-5112

(800) 787-6537

(303) 649-9299

(303) 649-9299

(303) 649-1328(fax)

Website

Email

Matching Resources

Association of Birth Defect Children

930 Woodcock Rd., Ste. 225

Orlando, Fl 32803

(800) 313-2232(24 hour registry line)

(407) 245-7035

(407) 895-0824(fax)

Website

Email

Canadian Organization for Rare Disorders (CORD)

PO Box 814

Coaldale, AB CAN T1M 1M7

(403) 345-3948

(403) 345-4544

Website

Easter Seal Society

250 Ferrand Dr., Ste 200

Don Millis, ON CAN M3C 3P2

Website

Email

MUMS

Mother’s United for Moral Support

c/o Julie Gordon

150 Cousta Ct.

Green Bay, WI 54301-1243

(920) 336-5333

(920) 339-0995(fax)

MUMS

National Organization for Rare Disorders (NORD)

100 Rt. 37, PO Box 8923

New Fairfield, CT 06812-8923

(800) 999-6673

(203)746- 6487 (fax)

Website