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HBOT
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Example
Letter to your congressman
Dear Congressman Rogers,
I would like to commend you on all the great work that you have done
and continue doing for our district. I am writing you to ask for
help for my 4 year old son, Austin, and other children like him in
our district and our country. Austin is a beautiful and smart
little boy who has Cerebral Palsy. He currently receives Physical
therapy, Occupational therapy, Speech therapy and Assistive
Technology/Computer training. It has been documented that, for a
person who is disabled like my son, over $100 MILLION will be spent
between the Government and their families for a lifetime to provide
all of the medical necessities and the best quality of life. We
have recently found out about a new type of treatment which will
help him greatly to recover his motor function. This treatment,
Hyperbaric Oxygen Therapy,
could cut his cost of living greatly. I would love for you to find
out for me why this treatment is having so much trouble getting
funding for research and why the NIH and the FDA are not even
looking at the documented cases where children have been helped.
Most of the Hyperbaric Oxygen research on the books today, come
from the 1960ıs and 1970ıs and for some reason was just dropped.
It is so very possible that if they had stuck with it and followed
through that Cerebral Palsy could have been wiped off the face of
the planet!!! Why canıt we make up for it now and help our kids and
all of our future generations???
The FDA wants double blind studies to be done but the Government
offers no funding for such studies. The double blind studies
intentionally withhold treatment from half of the children in the
study. This, in my book, is the epitome of unethical!!!! Once that
this time is lost it is not recoverable!! The sooner the treatment
is administered the better the results. The pure oxygen which is
administered below sea level awakens the dormant brain cells and
allows for better functioning. Thus, using Oxygen as a Drug. This
in Momıs terms, but I'll attach some of the information that I have
on Hyperbaric Oxygen Therapy for treatment of Cerebral Palsy/Brain
injury. HBOT has been used for years in United Kingdom to
successfully treat children with CP!! Why isnıt our Government as
anxious to help our children???
So, where does this leave parents of disabled children???
Traveling great mileage to find a Hyperbaric chamber, with a
Doctor, who will treat children with Cerebral Palsy. Paying out a
large amount of money for a proven medical treatment not covered by
insurance. How do the rural people in your district come up with
the $10,000- $15,000 for one round (a child can have over 3 rounds
of treatment) of Hyperbaric Oxygen Therapy?? We are personally
trying to set up a trust for Austin and doing what ever we can to
raise the money so that he will not be deprived for a more ³normal²
life. Any suggestions that you can make for us will be greatly
appreciated!!! Is there anyway that you can help all of our
children to be able to breathe this miracle drug-Oxygen???
Please, help us get Hyperbaric Oxygen Therapy FDA approved to treat
our children that are brain injured or have Cerebral Palsy and to
become a completely reimbursable treatment for insurance to cover!!!
Thank you for your time and again thanks for everything that you do
for southeastern KY. Please, help our children!!!
Sincerely,
Francie Roberson
Proud Mom to Jerad(6) and Austin(4, with spastic quadriplegia
Cerebral Palsy)
Attachment: What is Hyperbaric Oxygen?
Hyperbaric oxygenation is the use of I00% oxygen at greater than
atmospheric pressure. It is the same oxygen that we breathe normally
(which is 19-21% of
air).
However under pressure, oxygen, a gas, adheres to all of the laws of
physics. When pressure is increased, oxygen will be dissolved into
any body fluid in direct proportion to the pressure
(Henry's Law).
More oxygen, therefore, may be dissolved in the bone, the urine, the
lymph, especially the blood plasma and the cerebrospinal fluid
(the
fluid- that bathes the entire central nervous system).
Hyperbaric oxygenation is a method of delivering extra oxygen into
the body. It is not just the increased oxygen that is important, but
that free molecular oxygen is made immediately available for
metabolic use by the mitochondria at the tissue spaces in the body,
where all life takes place.
Hyperbaric oxygen is a drug and is administered in a closed chamber
and has a specific dose which relates to the depth of pressure. This
is referred to as the atmospheric pressure absolute
(ATA).
Sea level is 1.00 ATA, with the partial pressure of 19-21 -percent
of O'. The length of time of treatment, the pressure, the number of
treatments per 24 hours and the total number of treatments all
represent the "dose".
The ideal situation would be to take the brain injured newborn from
the delivery room to the hyperbaric chamber to prevent/repair the
damage immediately. With newer diagnostic techniques such as
transcranial doppler, functional MRI and SPECT scanning, brain
injuries can sometimes be detected at birth. It is at this time that
the patient should be considered for treatment as is done in Mexico
City and has been for many years in Russia and a British trial
published in 1964 in The Lancet.
The safety record for hyperbaric oxygen treatment is excellent. In
the United Kingdom, there have been 1.3 million hours of outpatient
hyperbaric oxygen administered without incident. Certain outpatient
centers insist upon myringotomy, i.e., tubes put into the ears of
the children to equalize the pressure. We do not feel that this is
necessary if the compression and decompression are appropriately
done. In our experience, 1 out of several hundred children may
require this. Ear inspection prior to and during the course of
treatment is mandatory.
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